Living with silicosis

Finding out that you or a loved one has silicosis can be overwhelming. Dealing with silicosis involves making many decisions while focusing on emotional and practical concerns. Remember, you're not alone.

If you are experiencing symptoms of silicosis, it’s important to act as soon as you can by seeing your doctor.

You may be able to claim compensation for your condition, which can provide crucial support and necessary treatment. If your claim is accepted, compensation could cover:

  • lost wages
  • medical, surgical and hospital expenses
  • chest screening X-rays or scans
  • rehabilitation treatment and equipment services
  • travel expenses for tests, scans or rehabilitation services
  • lump sum benefits for permanent impairment
  • additional lump sum benefits for a worker suffering from a terminal respiratory disease
  • support in returning to work.

Resources

Lung Foundation

Lung Foundation Australia funds research and delivers support services to people living with lung disease or lung cancer. It promotes lung health and early diagnosis, advocates for policy change and research investment, raises awareness about the symptoms and prevalence of lung disease, and champions equitable access to treatment and care.

Lung Foundation Australia’s website has information about services and support for patients and carers, including support groups, one-on-one support, and a silicosis support worker and support nurse.

Lung Foundation Australia

Lung Foundation Australia Peer Support Program

Lung Foundation Australia’s online support network lets you connect with others from across the country who have a similar experience with lung disease. There is a dedicated group for people living with silicosis, and another group for family members or caregivers.

The groups connect virtually through a No cost online platform so you can meet others from the comfort of your own home. The groups in the online network are led by volunteer leaders with a lived experience. Join a friendly, safe and supportive environment to discuss and share experiences, resources, thoughts and feelings through group chats, one-on-one messaging, or group video calls.

The Silicosis Support Network provides information and support services that provide support, guidance, information and education, and connects you to relevant support services.

The Silicosis Support Group
Support group for silicosis carers

Lung Foundation Australia Occupational Lung Disease Support Nurses

Lung Foundation Australia’s occupational lung disease support nurse service gives people living with occupational lung disease, their families or carers, the support they need. With information on your diagnosis, managing your condition and symptoms, plus support to work with your healthcare team, the service is designed to help you live well.

Book an appointment or refer a patient here: Occupational Lung Disease Support Nurse Service

Lung Foundation Australia Social Worker Service

Lung Foundation Australia’s occupational lung disease social worker service is a free telephone-based service for people living with an occupational lung disease or occupational lung cancer, and their family and carers. Through the service, our social worker can help you or your loved one to navigate the practical and emotional impacts of living with an occupational lung disease or occupational lung cancer.

Book an appointment here: Occupational Lung Disease Social Worker Service

WorkSafe Victoria

This WorkSafe Victoria video shows a former stonemason who is now suffering from silicosis. He talks about the impacts of silicosis on his life and health. Caution: This video may contain confronting content, and could be unsuitable for certain audiences. Viewer discretion is recommended.

Nick's story: WorkSafe Victoria

This WorkSafe Victoria video shows how one small business employer managed health checks for its stonemason workers, and supports its workers with their concerns.

Peter's story: WorkSafe Victoria

Last updated: 23 September 2026
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